The Gavin Derham Foundation & Special Needs Trust
About GD13
The Gavin Derham Foundation & The Gavin Derham Special Needs Trust were established following a sudden and life-altering medical emergency. In March 2026, 24-year-old Gavin Derham was found unresponsive and admitted to the hospital after experiencing status epilepticus, a life-threatening condition involving prolonged seizures. After spending more than four months in three different hospitals - including three months in a medically induced coma - Gavin was discharged in July 2026 and began his next stage of of recovery at home.
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While Gavin’s diagnosis remains unclear, his experience inspired the GD13's mission: to raise funds to support his continued recovery and provide resources, advocacy, and support to families facing epilepsy, status epilepticus (SE), and New-Onset Refractory Status Epilepticus (NORSE).
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This site follows Gavin's recovery, shares his milestones, and connects a community of support around him. Our goal is to fund resources that aid his healing, raise awareness of these conditions, and offer support to others going through something similar. Follow Gavin's story and connect with his family as they navigate this journey.
Medical Care
Leading specialists and clinical treatments.
Equipment
Custom mobility aids and supportive tech.
Therapy
Intensive physical and cognitive rehabilitation.
Home Care
Accessibility modifications for daily life.
The Special
Needs Trust
The Gavin Derham Special Needs Trust is dedicated to providing Gavin with the specialized medical care, long-term therapy, and adaptive equipment he needs for recovery. These funds are held securely to ensure his needs are met throughout his life, offering him the best possible chance at independence and healing.
Medical Research
Better understand the diseases and improve treatments.
Education & Awareness
Improve understanding and share information about the conditions.
Community Support
Provide resources and support to families affected.
​Advocacy & Resources
Promoting better care, recognition, and resources for the NORSE community.
The
Foundation
The Gavin Derham Foundation is dedicated to raising funds to support the broader NORSE and S.E. community, advancing research and providing resources, education, and support to individuals and families affected by NORSE.
