Since our last update, Gavin has been moving forward—slowly, surely, and with a tremendous amount of hard work. Being home has let us see his progress in everyday moments: steadier steps, a meal enjoyed, a familiar task becoming a little easier. There is still a long road ahead, but there is so much to be encouraged by. A Carefully Guided Recovery Gavin is receiving care through the University of Pennsylvania’s neurology practice, working with specialists in new-onset refract

On July 23rd, 2026, Gavin was discharged from The Mount Sinai Hospital in NYC to continue his recovery in his childhood home in Doylestown, Pennsylvania. It’s now been almost a month since the transition home, and we wanted to share some headlines: Wins To start, passing his swallow test in July was a HUGE win. He was able to start eating certain foods by mouth and his sweet tastebuds fired up pretty quickly. Anything savory, however, still didn’t taste familiar. After lots o

Gavin's Medical Event On March 11th, 2026, Gavin was found unresponsive and admitted to Dell Seton Medical Center in Austin, Texas after suffering from seemingly random, prolonged seizures known as status epilepticus. He was put into a medically induced coma and remained in the Dell Seton Neurocritical ICU for 6 weeks before being transferred to The Mount Sinai Hospital in New York City. Initial Diagnosis and Treatment - Dell Seton Upon arrival at Dell Seton, Gavin underwent

Welcome to Gavin’s story, and welcome to this community. If you are here for the first time, thank you for taking a moment to stand with us. What began as the most terrifying season of our lives has become something we still struggle to describe. It has been painful, exhausting, and at times almost impossible to breathe through. It has also been filled with love, courage, and moments that remind us that hope can survive even in the darkest room. In March of 2026, our lives ch